Ed's Daily Progress

Early Bird Tix for THE BFG Screening close this Sunday

With just a week to go, the early bird tix for Cure4Ed fundraising screening of The BFG at Cremorne Orpheum next Thursday 7th of July close this SUNDAY, yes in just 4 days. This is so that I can confirm the numbers and secure a private screening of the film. You may of course purchase tickets after this date but all tickets will incur an additional fee of $5 of the original price.

No worries if you can’t make but would like to show you support why not purchase a donation movie ticket? http://www.trybooking.com/LZGR

Ed's Daily Progress

THE BFG Box Office is now open

Cure4Ed movie screening of BFG at Cremorne Orpheum on Thursday 7th of July Box office is now open. Tickets can be purchased at


Can’t make but would like to donate there’s also the option of donating a movie ticket or just purchasing raffle tickets. Many thanks to those who have donated raffle prizes but we’re still open and welcome to donations until Monday 27th of June.

Ed's Daily Progress

Movie Screening and a call for donations

Yes, it’s been a long time since I’ve been on the blog I know but it’s definitely time. To be honest we’ve been concentrating on living  in the moment and enjoying life day to day  since there’s no denying the lights are certainly dimming on our little guy as he’s moves closer to the end of his journey than the beginning.

As part of our little guy’s 6th birthday celebrations we’re holding a fundraising screening of Roald Dahl’s BFG on Thursday 7th of July at 3:00pm in the Cremorne Orpheum.

The proceeds from this event will be shared between Bear Cottage, Arranounbai Special School and a medical research project for the Australian Niemman Pick Foundation- 3 special places who offer amazing help and assistance to our little guy. We’re hoping to purchase a reclining chair with wheels for Bear Cottage worth approximately $1500 and the remaining balance to be split evenly between funds for a school bus for Arranounbai Special school and a medical research program for an NPC treatment drug.

The movie booking link should be up in the next day so watch this space,  but in the meantime I’m looking for donations for the raffle. It may be toys, food, wine, experiences for kids, adults or families- no gift too large or too small, anything and all will be gratefully accepted. Please let me know by  next Monday 27th of June of anything you may be able to donate towards the raffle.

As always we are extremely grateful for your support which is given to our family in so many different ways and hope you can join in the birthday celebrations in some way.  After all how could we not organise a fundraising event for our Bear Cottage Super Hero week pin up boy?

BRC3045 SHW 2016 GoFundraise_FA