Cure4Ed Save the Date

Dear Family and Friends, It’s been a while between fundraisers and with our beautiful boy turning 7 in July we have so much to be grateful for and an even better excuse to celebrate so wanted to touch base with some dates for your diary. Can you tell I’m on University Holidays? Friday 7th of […]

Pub2Pub Fundraising UpDate

A very big thank-you to all those that ran, walked, talked, minded children, supported, sent warm wishes for todays Pub2Pub and also at other times. Our family is truly grateful for the amazing support we receive from family and friends. An extra special thanks to Jo Quarrell,  Joanne Allen,  Niamh Collins,  Alyson Cooke,  Natasha Gennusa, […]

Bear Cottage Super Hero Week

Super Hero week commences this week and we were fortunate enough to celebrate the launch up at Bear Cottage yesterday. Couldn’t resist sharing these pics with you all . It seems there’s a correlation between Super Hero’s and weather  as we’ll be up at Bear Cottage early tomorrow morning for Channel’s Sunrise Breakfast program who’ll […]

Cure4Ed Pub2Pub for Treatment Drug

Hi there, As you may have seen recently the president and founder of the Australian Niemann-Pick Foundation Mandy Whitechurch along with Kellie Adams (another NPC Mum) have been invited to attend the International Niemann-Pick Disease Alliance Conference to be held in Germany in October this year. This is an amazing opportunity to hear and contribute […]