Ed's Daily Progress

Cure4Ed Save the Date

Dear Family and Friends,

It’s been a while between fundraisers and with our beautiful boy turning 7 in July we have so much to be grateful for and an even better excuse to celebrate so wanted to touch base with some dates for your diary. Can you tell I’m on University Holidays?

Friday 7th of July Despicable Me 3 Screening: 10:15 at Cremorne Orpheum

Unfortunately we are no longer able to get an afternoon screening which I know would work much better for those working through the holidays but this time was the best I could and Isabel was so keen to celebrate her brother’s birthday with our annual July movie screening.

Tickets can be purchased via: www.trybooking.com/QTEX

All proceeds from the screening will go to Arranounbai Special School.

Sunday 27th of August Pub2Pub

Yep once again some will run, others will walk and stroll in the beautiful winter sun along the northern beaches.

All proceeds from our walk will got to Bear Cottage.

Sunday 17th of September:  Family Fun Day at Balgowlah Heights Bowling Club 

Hopefully by September the weather will start to warm up and it would be so lovely to bring our family, friends and community together with some beers, bowling and market stalls.

This event is not designed to put extra stress on anybody but an opportunity to celebrate. If you feel like you would like to get involved and run a stall on the day then please let me know by the end of July if you’re interested. Your stall could be food, cake, lollies, music, craft, second hand books, clothes toys, activities for the kids, the list endless and we are open to any suggestions. Once we know what sort of stalls we’ll be holding then we’ll be putting up a call for donations and assistance for helpers on the day.

You would just need to let me know before the end of July of the stall your proposing and turn up on the day with you’re gear and a willingness to celebrate.

The proceeds for this event will be spilt evenly between Bear Cottage, Arranounbai Special School and the Australian Niemann Pick Foundation.

On the home front, it’s been a fairly stable year for our boy so far this year with few hospital admissions and not too much further degeneration. He is still managing school all day, everyday, except when he’s in hospital. I even think on his last hospital admission at the end of last term we were discharged on Thursday evening and he made it back to school for the final day of Term 1.  Such a determined tough little guy who never ceases to amaze me, pretty much daily.

I too have had a really good first half of the year continuing on with university studies, strengthening my yoga practice and beginning mindful meditation. All of which have  been a really interesting and useful path to travel and certainly helped to improve both my physical and mental strength.

In the meantime, get those dates in your diary, ideas together for those interested in holding stall at the Family Fun Day, and  enjoy some pics…………

1 thought on “Cure4Ed Save the Date”

  1. Really enjoyed your update, Alison and in particular the great photos. You must be so proud of your lovely “bunch” and I’m sure they all keep you on your toes. It’s great that you are now able to have some time for yourself. I cannot respond with offers of a stall for your event, but we would love to help out with a donation. Looking forward to your updates. Loving wishes to you all.

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