The records keep getting broken with our little guy managing to keep away from any overnight hospital stays in just over a month. This is by far the longest stint out of hospital since his ALL diagnosis. This has given us enough time to jump on the Fundraising Freeway and raise almost $5 500 in a month which is a very impressive start. Given the success and positivity this has created I’m sure there’ll be many more FUNdraisers to come.
Unfortunately our little guy has not been with out many hospital days visits for Enema’s, Bone Density tests and Bone scans and the results have not great been great.
It’s a case of mopping up all of the carnage caused by all of Chemotherapy and associated sickness from last year.
His enema has revealed he has some sort of blockage in his bowel and the Bone tests shown bone density deficiency which has caused stress fractures in his ribs, pelvis and lower back area which may explain some of the pain and lack of mobility. I’m thinking a few broken bones would do that wouldn’t they? This has only cemented my theory that he has an unbelievable high pain threshold.
So the plan is to admit him into hospital next Monday and give his bowel a complete rest by feeding him via TPN (Total Parenteral Nutrition) which means all of his nutritional requirements will be delivered through his Central Line and directly into his veins. He has been on this for short periods of time previously during other hospital stays when he has bee quite ill.
Once his bowel has had a rest and providing his lungs can tolerate it they will put him under General Anesthetic and perform an Endoscopy of the bowel to work out exactly what is going on. There’s a chance they may be able to repair the problem whilst under the same GA or it may take another operation depending on what they find. Either way it looks like he’ll be on TPN for a while and whilst he’s in hospital it will be something we’ll have to learn so that he may go onto home TPN. Another Medical skill to add to my medical bag of knowledge.
Also whilst he’s in hospital we’ll speaking with an Endocrinologist to ascertain what can be done to fortify his bones. There was a preliminary discussion of IV bisphosphonates which is a group is drugs used to strengthen the bones and commonly used for woman going through Menopause.
What’s causing all of this you ask? Well the bone weakening is a common side effect of Chemo but the bowel blockage is another case of “well we don’t usually see this but………”.
This admission is obviously disappointing for us as a family, as over all he’d been going quite well and we were enjoying trying to return to normal family life. Here’s hoping the stay is short and the problems minor.
In the meantime here are a few pics from the past month.