Recharge, Rejuvenate and almost Ready to Go Again

After our long weekend all inclusive package at Club WestMed, Little Ed spent his standard 7 days  in hospital on antibiotics for a relatively minor  Strep Infection.  His blood counts were low so there were lots of platelet and full blood transfusions to assist his recovery. By Day 3 or 4 he was able to come out for a few hours in the afternoon before returning in the evening for his IV antibiotics. He was discharged last Saturday and has spent the passed 6 days getting stronger, louder and ordering everybody about.  It’s exhausting for us all and he almost feels like a regular 2 year old toddler which whilst tiring is really great to see.

There were 2 clinic visits this week and 2 scheduled for next week.  Next Thursday, 27th of June he’ll have a Lumbar Puncture to measure the effectiveness of the last round of  Chemo and providing there are beds available he’ll be admitted then for 6 full days of Chemo in hospital. It’s exactly the same chemical cocktail as last round so hopefully he’ll handle them as well as he did this time.  He’ll then have another 3 week break to mop the carnage, treat any infections and  blood transfusions available to assist his recovery and bring his blood counts back up. At this stage there is  one more round of exactly the same protocol as I’ve just described.

These 3 rounds in total will be completed in about 8 weeks time which will be mid August and we hope to have a clearer picture of the effectiveness of this block of Chemo and whether we’ll be heading down the path of a Bone Marrow Transplant.


2 thoughts on “Recharge, Rejuvenate and almost Ready to Go Again

  1. …would love to see Ed ordering Tom around…I bet Tom just looks at him and sits on him. Proud of you Eddie. Xxxx

  2. We’ve been overseas since mid May (still in the UK) and so we’ve just been catching up on the last 4 posts. When you read them all at once it feels a bit like a roller coaster. I can’t imagine what it feels like to be on the roller coaster 24/7. It’s great that there has been progress even with a number of set backs, and that Ed is in such good hands. How blessed we are to live in a country where such high quality care and staff are available. I’m filled with admiration for your toughness and devotion Ali, but I’m not surprised given the ‘stock’ that you’re from. Love, blessings and our ongoing prayers, Trevor & Carmen

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