As I type my feet are firmly placed on the wooden coffee table in the parents lounge of The Camperdown Ward but either tomorrow or Monday will mark the end of little guy’s second round of Chemo. Whilst we’re not quite there yet I can say with great confidence that he has tolerated this round of chemo much better than the previous with far fewer complications and side effects.
I realise it’s been almost a week since my last post and this is because it’s been a busy one: with day trips to nearby Parramatta Park, visits from the Music Therapist, Jacob the balloon sculpture extraordinaire and just enjoying time with his brother and sister. He has continued to make friends with the new lot of nurses on Camperdown Ward and dazzle them all with his cheeky ways and beaming the smile.
This has been the first week in our entire almost 3 month stay where our days at the hospital have been quite busy not with illness, tests, scans, ICU Dr’s etc but just hanging out having a bit if fun as his body repairs and recovers from the onslaught of the previous month.
Today Ed had a lumbar puncture and received some Chemo (methatrexate) into his spine intrethecally ( think Epidural Mum’s). His blood counts are on the way down which is to be expected at this stage of the Chemo so there is a chance he may contract an infection and require supportive measures in hospital.
Either tomorrow or Monday ( depending on his health and blood counts) he will have an 8 hour chemo infusion which will mark the end of the 2nd round of Chemo. We hope to have him home for day visits over the weekend if he is still well and happy.
From there he’ll have a 2 week break from Chemo Drugs whilst the blood counts come down and go back up again in time for the Part 3. Hopefully he will endure this ride without too much ill health, infections, breathing issues so that he may be able to get home for a week or so in between the 2 rounds. If his health continues he may look to getting out towards the end of next week, around the 9th or 10th of May but as we all know there are a lot of temperatures and infections to be had between now and then.
The plan at this stage is to have a Bone Marrow biopsy towards the end of the following week ( around the 15th of May) which in theory will confirm along with the previous biopsy that the Leukemia has stayed at bay and he his still officially in “remission”.
If they don’t find any Leukemia cells (of which they don’t in about 90% of cases) then he is still in remission and will continue into the next round.
This next round of Chemo cocktail which if all goes to plan will commence on Monday 20th of May involves a scheduled inpatient stay of 3-5 days depending on their reaction every fortnight for 8 weeks.
Hoping the next post continues to bring more photos of our cheeky, ever smiling brave little guy.